Well the last post left me sounding miserable, and I was for about 2 days. The beautiful thing is that every day is a new day and it can be totally different than the day before. Thursday last week I walked all over the neighborhood with Elliot on his bike, filming him trying to do jumps on the uneven cracks in the sidewalk. Friday we met a friend at the playground just around the corner… and I was able to jog home about a block- feeling really good with only a twinge of soreness where my port is. This weekend we avoided the rain with family time inside and a visit with friends to the Children's museum in Burlington.
I have felt so good and had so much energy that I am staying up too late at night. Watching movies with Clayton, or reading a whole book in one night (into the early morning), avoiding folding laundry, eating snacks. I do know that I need more rest than I have been getting, so I try and nap. My normal nap schedule happens the three days a week Elliot goes to preschool, after I get home from dropping him off I curl up on the couch and sleep for about an hour. Today I was busy so I fell asleep later, when Clay got home from school I didn't even open my eyes but just answered "yes pick up all the kids" and back to sleep it was.
Yesterday the shedding started. Well it's more like me grabbing a little hair and it coming out in my hands. I showed Elliot he said "that's cool" I showed Gabby she said "that's cool" I show Clay and he is like gross, just let it be. First thing Elliot did this morning was try to pull out a little hair, and then it was the last thing he did tonight too. He can't wait to see me bald he says. I have been okay with cutting it all off but I think it may be harder than I expect to have no hair. One of my books talks about it, and it makes the point of when you loose your hair your illness enters the room before you do. People know you are sick. I haven't felt like I look like a sick person, besides the bandages I had on my neck which now are gone and gnarly stitches are in plain sight instead. Elliot also has started saying "I hate that you have cancer." Me too buddy, me too. Gabby has thankfully been less dramatic than she was being. Did I mention in tears of frustration and being upset she said "you don't know what it's like to have a Mom that has cancer and always worry." I continue to talk to them daily about what is going on and how good I feel and show them how my port incisions are healing (good but can the super glue come off soon and the stitches out!!)
Tomorrow is the beginning of treatment #2. Here's to hoping this trend of feeling healthy and the medicine working continues. xoxo
1 comment:
I hadn't ever thought of the baldness as "entering the room before you do"but it makes perfect sense. Probably once you get used to it you will be invincible - once you can walk into a room bald and be ok you will probably be brave enough for anything!
Hang in there Sarah, we are cheering for you!
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